tag:blogger.com,1999:blog-4892567951346285110.post1946587499410979220..comments2023-11-02T10:58:05.869-04:00Comments on Gavin's Voice: How much should I tell people?The VW'shttp://www.blogger.com/profile/05116325494368190699noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-4892567951346285110.post-23215933177407775422011-09-11T17:49:47.818-04:002011-09-11T17:49:47.818-04:00Oh ... do I know this dilemma! Emily doesn't ...Oh ... do I know this dilemma! Emily doesn't talk, and she doesn't play with most toys except baby toys. Stickers? She doesn't care about them. Yet every new doctor or nurse or child life or whoever wants to give her a sticker. I just take it, hold it in front of her like she wants to see it, and say thank you. <br /><br />I would have done the same as you at the wedding. I would have just smiled. It's so hard sometimes ... (((hugs)))ANewKindOfPerfecthttps://www.blogger.com/profile/11978293330074662766noreply@blogger.comtag:blogger.com,1999:blog-4892567951346285110.post-70741586528526712322011-09-09T12:38:55.586-04:002011-09-09T12:38:55.586-04:00I don't know how you feel exactly so I'm n...I don't know how you feel exactly so I'm not going to say I do, but i do know how it feels when someone just assumes that your child understands. It is totally different with Em i realize that, but so many times people meet her and talk to her , ask her a question and wait expectantly for a response. A response that is not coming, she's not going to answer them, so instead of explaining that she is almost three and for the most part non verbal I answer for her. They think that she is shy and cute and if it's just a casual meeting I leave it at that. I only go in to detail with people that will be in her life or friends, or people who have the time and desire to listen and learn. <br /><br />Hugs!!Stephaniehttps://www.blogger.com/profile/10792117187001612101noreply@blogger.comtag:blogger.com,1999:blog-4892567951346285110.post-27637502291277919572011-09-09T12:37:53.140-04:002011-09-09T12:37:53.140-04:00Alicia...I SO get it. All of it. I struggle too......Alicia...I SO get it. All of it. I struggle too...the " story" is so long....it's easier just to smile and say nothing. <br />I have also found when people ask "how's Hudson?" I say " doing good, as good as he can be for Hudson" because I know he is never really " good" and it feels weird explaining why he is never "good" he is sick, always will be, suffers daily....but hey...if he is not hospitalized, not throwing up, seizing a little less....well then I guess he's good!<br /><br />Such a complicated existence, huh? I guess that's why we are so lucky to have this...other moms who "get it" <br /><br />And btw....I still cringe when strangers try and talk to Hudson...I never assume they get something is wrong,and I usually don't have the time or energy to explain why there is no eye contact, talking,etc.<br /><br />Wouldnt it be wonderful if there was a s.n. community where we could all gather annually, live...not on the Internet, and just hang??? that would be cool!:)<br /><br /> hugs to you and sweet Gavin!Debbiehttps://www.blogger.com/profile/12469385508031005419noreply@blogger.comtag:blogger.com,1999:blog-4892567951346285110.post-15191772312233171372011-09-09T10:38:15.334-04:002011-09-09T10:38:15.334-04:00One thing that happens to us a lot too, is people ...One thing that happens to us a lot too, is people talk to him and tell him what they are doing as if he understands. He is almost 6 after all, so they just assume he does. I never say anything, just let them keep on going!Laceyhttps://www.blogger.com/profile/03321275110857561824noreply@blogger.com