tag:blogger.com,1999:blog-4892567951346285110.post2609881422100261011..comments2023-11-02T10:58:05.869-04:00Comments on Gavin's Voice: The UFO's Have Arrived!The VW'shttp://www.blogger.com/profile/05116325494368190699noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-4892567951346285110.post-64970860363322742972009-07-22T22:07:25.999-04:002009-07-22T22:07:25.999-04:00Alicia,
You guys look great-the air zoo looks like...Alicia,<br />You guys look great-the air zoo looks like fun. I think we are going to try that soon! If it is any consolation...when Parker got the exact ones in the fall-he fought me every single time. I would take them off because I thought they were hurting him. It just took some time to get used to them. We recently got to go down to the smaller SMO's and he fights me a lot less on those! I think it is a sensory thing too-I don't think Parker liked the way they felt on his legs. Anyway-just checking in and hope you guys are doing well.<br />Jen CardenJen Cardenhttp://familywhirlwind.typepad.com/our_family_whirlwind/noreply@blogger.comtag:blogger.com,1999:blog-4892567951346285110.post-60717925039175452712009-07-22T10:32:09.816-04:002009-07-22T10:32:09.816-04:00I hope everything turns out OK with the EEG. Poor...I hope everything turns out OK with the EEG. Poor guy! <br />Love,<br />JulieInspiredhttps://www.blogger.com/profile/08680325645387784822noreply@blogger.comtag:blogger.com,1999:blog-4892567951346285110.post-20050560699344827052009-07-17T13:35:48.218-04:002009-07-17T13:35:48.218-04:00I am sorry to read about possible new seizures. I...I am sorry to read about possible new seizures. It does sound like IS, I pray it's not!<br /><br />I wanted to comment on the Compleat Pediatric formula that you mentioned. I have read up on it in the past, but it won't work for Peanut. Although it is lactoser free, it has sodium caseinate which is a milk protein. We are dealing with a milk and soy protein intolerance, so we wouldn't do well on this. Thank you SO MUCH for the suggestion though! Us mammas gotta help each other out. :)ANewKindOfPerfecthttps://www.blogger.com/profile/11978293330074662766noreply@blogger.comtag:blogger.com,1999:blog-4892567951346285110.post-32706218936800056652009-07-16T15:43:07.324-04:002009-07-16T15:43:07.324-04:00Did he have infantile spasms? Thats kind of what i...Did he have infantile spasms? Thats kind of what it sounds like. They sound a lot like the siezures Jax has. His arms flail out like someone scared the bejeezes out of him. And then he's fine. If you can get it on video and show me. I pray that its not siezures. I'm so sick of siezures I could scream.Laceyhttps://www.blogger.com/profile/03321275110857561824noreply@blogger.comtag:blogger.com,1999:blog-4892567951346285110.post-12413266331025877252009-07-16T15:22:48.681-04:002009-07-16T15:22:48.681-04:00Love the UFO's! You do have a handsome little ...Love the UFO's! You do have a handsome little alien;) Praying for good news and no seizures. ((Hugs))Hopehttps://www.blogger.com/profile/08185169858979564182noreply@blogger.comtag:blogger.com,1999:blog-4892567951346285110.post-8535008312980442002009-07-16T14:05:21.626-04:002009-07-16T14:05:21.626-04:00Oh sweet Gavin .. the stander does not look fun bu...Oh sweet Gavin .. the stander does not look fun but it will be worth it,promise.As for the EEG,I'm right there with you.Zoey has had way too many to count and each of them,no fun.For anyone.Not to mention waiting for the results.Saying prayers for a really nice looking EEG so Gavin can keep making all his forward moving,wonderful progress.Heatherhttps://www.blogger.com/profile/04209967185741239050noreply@blogger.comtag:blogger.com,1999:blog-4892567951346285110.post-25177857706412860022009-07-16T13:11:55.903-04:002009-07-16T13:11:55.903-04:00Poor little guy! Addy responded to her stander the...Poor little guy! Addy responded to her stander the same way, we just had to be persistent! Stinks doesn't it! Hopefully you won't have to do another test, they are not fun for the entire family it affects everyone in my opinion!Cammie Heflinhttps://www.blogger.com/profile/07843057037279743749noreply@blogger.comtag:blogger.com,1999:blog-4892567951346285110.post-5821503349595767802009-07-16T12:32:17.190-04:002009-07-16T12:32:17.190-04:00I'll be praying for you and Gavin--that you...I'll be praying for you and Gavin--that you'll get through the EEGs and that the results will show that he's not having seizures.Annette Gysenhttps://www.blogger.com/profile/07458438008034828484noreply@blogger.comtag:blogger.com,1999:blog-4892567951346285110.post-21958593217427046122009-07-16T11:13:50.750-04:002009-07-16T11:13:50.750-04:00I love the UFO's too! So funny. And appropri...I love the UFO's too! So funny. And appropriate too, since many days I feel my life has been invaded by alien life forms!! :)<br /><br />I am sorry to hear of the possible seizures, that must be so scary and heartbreaking. I will pray that the EEG will go as well as can be expected and that they are not seizures or anything that is harmful. I can understand that you are loving the active and alert Gavin and don't want to sedate him more. I am sorry you are having to deal with this and I am praying.Aliciahttps://www.blogger.com/profile/04061378391288892565noreply@blogger.comtag:blogger.com,1999:blog-4892567951346285110.post-21047134813548366632009-07-16T10:21:22.862-04:002009-07-16T10:21:22.862-04:00I love that you call them UFO's! For some reas...I love that you call them UFO's! For some reason our PT doesnt want Alex to wear these. Alex's feet turn outwards, reminds me of a duck, but still no UFO's for us at this time.<br />The EEG process sounds horrible. Im hoping you get the answers you want, and he IS NOT having seizures.Anxious AFhttps://www.blogger.com/profile/10911308224630696808noreply@blogger.com