It has been kind of a sad week for me. Gavin started having seizures again last week. The neurologist had taken him down on the amount of anti-seizure medicine he was taking, so hopefully this is what is causing them. He was hoping to get Gavin off the med, but it looks like he still needs it. Gavin's EEG is Friday, so hopefully it will tell us more. It is so hard to watch him have the seizures! It looks like he is startled and flails his arms out. He also cries a little with them. I don't know if it hurts or if there is another reason why he cries. He usually has them after waking from sleep. Please pray that these can stop! If he does continue to need to be on the anti-seizure meds he will need to be changed to a different kind. His doctor says that what he's on now isn't good for long term.
On a lighter note, Gavin started 'school' last week. A PT comes to our house for about an hour to work with him. She also gives us ideas to help Gavin to progress developmentally. A lot of the stuff I've already been doing with him, but she did have a few great ideas and insight for us!
Gavin has a big weekend coming up! He is going to be baptized on Sunday! He is finally doing well enough and out of the hospital! We are happy about this! We'll have to see how well he tolerates it. He HATES his bath and getting his head wet!
I've posted a few more pictures on the carepage site. The boys have begun running when they see me with the camera! At least Gavin can't get away yet! Although, I would love it if he could! It's funny how things are. Jacob was reminding me about my response to Caleb's first steps. I guess I said, "Oh No! I don't want him to grow up this fast!" Now I would give anything to have Gavin crawling or walking! Be careful what you ask for! I used to say, "I wish they would stay like this forever!" Now I'm wanting Gavin to move along! Oh well!
Thanks for your continued prayers and support!
Love, Alicia and Family