I can't shake a distraught feeling that I have had since an encounter with a young man at the grocery store this morning. He came up to me and said, "What's wrong with him?", refering to Gavin. I didn't know how to respond. I was upset that he had the nerve to ask such a question! So I said, "That's kind of rude to ask, don't you think?!" He claims that he asked me because he has a nephew with heart problems. I then told him that Gavin does have heart problems and that's all I said. I felt very sad after this. I'm used to people looking at him and giving me looks of pity when they see he has a tube hooked up to him (feeding and oxygen at times), but they usually don't have the nerve to ask something like this. I guess I'll have to become more tough skinned, but I don't want to have to! I really appreciate it when people look at Gavin and smile and say , "Cute Baby!", or something like that. I really DON'T like it when people say that he doesn't look as "Down syndrome" as some do! He looks like Gavin! The way God intended for him to look! Also, he HAS Down syndrome, he ISN'T Down syndrome! He's a person with needs and feelings just like all of us! Why do some people think that they have the right to know what's "wrong with him" and talk about him to me this way?! Joel said that I should have said something like: "All of us have something wrong with us since sin entered the world." "Share what's wrong with you and I'll be happy to share what's 'wrong' with him" or "It's obvious what's wrong with you, at least you have to ask to find out what's 'wrong' with him." I just feel so sad that Gavin will always have to face these encounters! I really feel mama bear coming out at times like this! I guess I'll have to pray about it. The moral of this story is: People have feelings and if you can't say something nice, don't say anything at all! That's what my mom always told me! Thanks for teaching me manners mom! Thanks, all of you, for listening to me vent!
We received some more bad news from the neurologist. The CAT scan that Gavin had shows that he had a stroke back in April when he was so dehydrated. The stroke didn't show up on the first CAT scan that Gavin had because it takes about a month for it to show up on a scan. If Gavin could have had an MRI, it would have shown up right away. Like I've said before, Gavin can't have an MRI because he has a pacemaker. The neurologist says he hasn't seen the report with his own eyes, so we don't know what part of the brain was affected. This may be why Gavin continues to have seizures. I feel like it's never going to end! I'm tired of being patient! I want answers! I want no more seizures! Please pray for this!
Enough bad news! Now for some good news! Gavin isn't gagging as much as he used to since changing from the higher calorie formula to the regular kind! I'm really happy about this! He also seems to be focusing a little better on things and us with his eyes! I'm thankful for the little things!
Thanks for your continued prayers!
Love, Alicia and Family