I was told, by Joel, that my last update was too harsh concerning my comments about "some doctors" and about "how those with special needs are sometimes treated." I just want to apologize if I came across this way, but I also want to clarify my thoughts.
As for the comment about doctors; I am just frustrated! Some of them did make mistakes and "dropped the ball", as one doctor confessed to me. Also, it's not like the mistake was made on something complex, like Gavin's heart condition. I think I would be able to accept a mistake made on that because he was born with a very complex heart condition, but keeping him hydrated? I just don't find this to be too complex!
As for my comments about how those with special needs are treated; Again, I'm just frustrated! Also, I'm just being the 'voice' of someone who can't voice their opinions. Hence, the name of this blog: Gavin's Voice. I feel that I need to speak up for Gavin since he and others aren't able to. I NEED to! It helps me to feel like I am doing SOMETHING, when there is so much that I can't do to help Gavin and others. This is not an easy thing for me to do either. I actually feel very exposed knowing that others actually read this! Sometimes I think that I should stop blogging, but it helps me to express my feelings, plus it's a way to let others know how Gavin is doing. This way we don't have to answer so many questions, etc. I do feel a little weird when I think about others knowing so much about me, my feelings and our family. Maybe all of you should start a blog too! This would be more fair don't ya think?!
Anyway, I just needed to get these thoughts out there. Besides, I figure, if people aren't happy with what they read on here.....don't read it, right? I am sorry if I upset anyone though.
Today I came into the room to find Caleb having a heart to heart conversation with Gavin. He was saying: "I wish you could taste the milk that you get. I hope you don't have to be on oxygen anymore. I hope that you don't have to go to the hospital again." It was so cute, yet so heart breaking for me to hear and see! He was also really worried when we were driving to the pulmonologist office today. He saw the hospital, because it's right by their office, and he said to me; "This isn't a doctor that Gavin is going to have to stay at, is it Mom?!" Thankfully, I was able to tell him that Gavin would be coming home with us! Although, we learned at the visit that they want to do a sleep study which means an overnight stay at the hospital, and also some other test to rule out trachea malasia. Ugh! I really don't want to ever step foot into a hospital again! But, at least Gavin's home with us tonight! Caleb, and all of us, are happy about this!
Have a great night!
Love, Alicia and Family