We went to the neurologist this week to talk about getting Botox injections for Gavin. There is so much conflicting information on getting this done. I went in not sure about the whole thing, but I left feeling fairly confident that it's something that we should at least try with Gavin.
I really trust his neurologist! I am confident that he would not steer us in a bad direction. He has done this for the last 5 years, for 100's of patients. He has had great success with it. He said that he only had 1 patient that had any adverse side effects, so I'm feeling pretty good about those results. Gavin's neurologist used to be an orthopedic surgeon, so he's a very smart guy. He said that he thinks that it could help Gavin a lot. Gavin has so much spasticity in his lower body and it makes it difficult to bend his hips, legs and ankles. The Botox would help to losen the muscles and allow us to do some really good therapy on Gavin while he is more loose. That is the biggest thing, after getting the shots, we would have to work his muscles hard to losen them up. The doctor said that sometimes you only need a couple of injections between 3-6 months apart and if therapy is done between times, some patients haven't needed to come back for more Botox because the therapy helped to losen the patient up enough. Right now, Gavin is too tight and spastic to do good therapy on him. So, as of today, I am planning on giving this a try soon. Hopefully this will benefit Gavin greatly!
Also, I wanted to update all of you on the "mall incident." I decided to call the management of the mall, instead of writing them a letter. This way I would know that something was done about the situation. I called them last week and this week a manager called me back. She was very nice and said that I was right in my thinking. She said that exceptions to their rule should be made for children with handicaps! She said that she would talk to the security guard about this. She also said that the general manager might be giving me a call to talk more about this with me. I hope that he does, because I really want this matter to be cleared up and I want to make sure that children with special needs or adults with special needs are able to do what everyone else gets to do! I told the lady that I wasn't upset with the guard, because he was just doing his job, but that I NEEDED to stand up and fight for my child and others like him. I believe that this is a great responsibility that I have now. Gavin and others like him deserve others fighting for their comforts and rights! And, this Momma is not sitting down without a fight, if that is what is needed! But, I will do it with a smile on my face and a good attitude. "The squeaky wheel may get the grease," but I also believe that one with a good attitude gets even more! :)
And, just because I think posts are better with pictures, here is one of my little guy! Isn't he precious?!
"Better is the poor who walks in his integrity, than one who is perverse in his lips, and is a fool." Proverbs 19:1