No cute pictures.....no cute things to say.....no funny stories.....no words filled with hope and thankfullness.....
You will find NONE of these things in this post!
I am barely hanging on and I don't know how much longer I can do this!
Gavin is still sick, and his seizures are OUT OF CONTROL! He fights them so badly and gets himself into such a state of turmoil! His seizures are weird....I don't even know if they are a true seizure, but they make him madder than mad!
He is up at least half the night...crying! I am up with him....feeing miserable and sick as well....and wanting to cry right along with him!
His sats are stable, but since he is crying so much, they plummet and his heart rate goes sky high! He fights everything.....especially nebulizer treatments, which he needs so badly right now! I have very little strength, since I am sick too....and what strength I have left is sucked out of me as I try to control him while I am doing his nebs....seriously.....this boy is STRONG! And, when he is not feeling well, he fights nebs to the bitter end!
I am seriously losing it! I need sleep! I need to feel well again! I need Gavin to feel well again!
Please pray! Pray that Gavin gets better! Pray that he can be comfortable! Pray that his seizures will stop! Pray that he will sleep! Pray that I can sleep! (Because even when Gavin does, I can't.....because I feel so horrible and I'm so worried about him!) Pray that he can stop crying so much! Pray that I can heal and feel better too! Just pray! Thank you!
My prayer for the day: Lord....please give me strength!
"God is our refuge and strength, a very present help in trouble." Psalm 46:1