Gavin continues to do well so far with med decreases. I told them to just go down on the medicine, but make sure that they don't tell Gavin what they are doing. Maybe we can sneak it by him, probably not though, he's a smart one! He has been sleeping well and when awake quite happy, so he's tolerating things well. Thanks for the prayers! Please keep it up!
If it weren't for the high meds he's on and feeding issues we would probably be headed home soon. But, we'll just have to be patient!
I'm headed home this evening. Please pray that Gavin is a good boy for the nurses and continues to do well and have no complications! We are so thankful to finally be seeing the light at the end of this very long tunnel! Although, Gavin still has a lot of work ahead of him and future surgeries. But to go home for awhile will be wonderful! Whatever the future holds for our family, I know that God will give us the strength and grace needed!
I hope you are all doing well. Thankyou for being a part of our lives and for all your support!