Those of you who don't need to use these items may be interested anyway. I talk about some of these things on this blog and you may be interested in what some of it looks like. I'm not going to take pictures of everything and I can't take pictures of all of the things since some have yet to come in, like a wheelchair. (Which I am not looking forward to using at all! We get enough weird stares when we are out and about in a stroller, so I can only imagine the looks of pity that we will get with Gavin in a wheelchair! Again, I don't know why I care about what others think, but I do.)
Anyway, here are some of them:
This is the nebulizer machine that we use to give Gavin his breathing treatments 3 times a day. We use the little blue tool on top for percussion on his back and chest to try to keep his lungs clear. These items and, of course, God's grace have kept Gavin out of the hospital for almost a year now!!! We are SO thankful for this!
This is the pulse/ox machine that we use to test Gavin's heart rate and how much oxygenation his body has. We used to use it daily, but now just every once in awhile to make sure he's where he needs to be. Gavin has a pacemaker, so his heart should be regulated by it, but you never know. We mostly check for his oxygen level since he's had issues with this in the past.
Speaking of his pacemaker, this is the machine that we use to send info from the pacemaker to University of Michigan hospital so that they can make sure that it's doing what it's supposed to. We hook it up to our phone line and then place the round paddle over his abdomen where the pacemaker is in his body. We do this every 2 months. As the pacemaker gets older we will have to do this more often because the batteries only last around 5 years, so they need to know if they are wearing down. Gavin will need to go back to U of M to have the batteries changed when they are getting low. Hopefully this will be the ONLY reason that he will have to go back there for a LONG, LONG time!
This is the backpack that came with the feeding pump that Gavin uses. It holds the pump and the feeding bag. It's very nice because it keeps the food cold with a pocket for an icepack and it's very discreet looking.
This is what it looks like inside. The bag holds Pediasure which is his only form of nutrition at this time. We are still somewhat working on getting him to like food by mouth. This may take forever! He is switching to another form of nutrition soon. It's something like pediasure, but it has more calcium, zinc and Vit B, which he is not getting enough of with the pediasure alone.
This is Gavin's G-tube. He had surgery last year to place it directly into his stomach. This is the tube that I accidently pulled out awhile back and felt SO bad about doing it! The feeding bag has tubing that hooks right into the tube going into his stomach. Gavin never even tastes a thing! Which, unfortunately, he's just fine with! In this picture you can also see some of Gavin's battle wounds, or scars from the many surgeries that he has had. Not to mention his adorable belly that I love to tickle! :)
These are all of Gavin's medications, minus the ones for his breathing treatments. Those are all the syringes that we use each day for giving the meds. Some of the meds are liquid and ready to give, but 3 of them need to be crushed and added to water. You can also see a can of Pediasure.
This is Gavin's crib that he sleeps in. He shares a room with Caleb. Lately he hasn't been the best roomate because he wakes up 'talking' and wanting to play with Caleb early in the morning! Most of the time Caleb can just sleep right through it thankfully!
This is "Gavin's corner" in our living room. This is where he hangs out and plays with his toys during part of each day. He loves his toy bar that his physical therapist brought for him to use! He's not very good at grabbing for toys yet, but he does when they are right in front of him on this bar.
This is Gavin's mini-recliner chair. Isn't it adorable?! He's really comfortable in it and seems to like sitting in it a lot!
So, there you have it.....more of a day in the life of Gavin!
"It is written, 'Man shall not live by bread alone, but by every word that proceeds from the mouth of God.'"