Since Gavin has lost 3 pounds in the last month and a half, his nutritionist has formulated a new plan for feeding him. It doesn't make sense why he has lost so much weight, but she is hoping that he just needs more calories. Gavin has stayed at the same weight (within half of a pound) for about a year and a half. Since he had been too heavy at one point (2 years ago), this hasn't worried them. But, now that he is losing weight, it is worrisome. It's not like he expends a lot of the calories that he gets. He pretty much lays around, although he is more wiggly than he used to be and he rolls over to his tummy continuously throughout the day. (He still can't figure out how to roll from his tummy to his back though.) So, why he is losing weight is a mystery???
We have been instructed to increase his calorie intake by 11 percent. Why 11%, I don't know? I thought it was kind of funny actually. Why not 10% or 15%? I have found that doctors and nutritionists are very exact and precise with special kiddos like Gavin! For some reason I find this to be funny. I guess because I'm not a person that reads the directions. I just add a little bit of this and try to figure it out on my own. Having Gavin has made me become very exact in many ways. Maybe this is a good thing, but I don't like it.
Gavin is still getting the same amount of fluid that he was getting, but he is getting more of the food part of his intake and less of the water part. He struggles with getting too much fluid into his stomach and has gagging issues, so increased volume wasn't possible. Since he receives all of his food/water through his G-tube, it works out that he is still getting the same amount of liquid each day. It's just in a different form.
Am I boring you? This is what I mean by having to be more exact, since Gavin has come along. Some of you probably understand and are interested, the rest of you are probably yawning. :)
Anyway, hopefully this works for Gavin. He doesn't look skinny, especially in pictures, but that is because his face looks full and he is short for his age. (Most people with Down syndrome are on the shorter side.) If you saw him in his birthday suit, you would see just how skinny he is! His tummy has NO extra fat. You can see and feel his ribs. And, his legs are SKINNY! So, Bring on those calories! I wish that I had this problem!!!
"Then the King will say to those on His right hand, 'Come, you blessed of My Father, inherit the kingdom prepared for you from the foundation of the world; for I was hungry and you gave Me food; I was thirsty and you gave Me drink; I was a stranger and you took Me in.'" Matthew 25:34-35