No cute pictures.....no cute things to say.....no funny stories.....no words filled with hope and thankfullness.....
You will find NONE of these things in this post!
I am barely hanging on and I don't know how much longer I can do this!
Gavin is still sick, and his seizures are OUT OF CONTROL! He fights them so badly and gets himself into such a state of turmoil! His seizures are weird....I don't even know if they are a true seizure, but they make him madder than mad!
He is up at least half the night...crying! I am up with him....feeing miserable and sick as well....and wanting to cry right along with him!
His sats are stable, but since he is crying so much, they plummet and his heart rate goes sky high! He fights everything.....especially nebulizer treatments, which he needs so badly right now! I have very little strength, since I am sick too....and what strength I have left is sucked out of me as I try to control him while I am doing his nebs....seriously.....this boy is STRONG! And, when he is not feeling well, he fights nebs to the bitter end!
I am seriously losing it! I need sleep! I need to feel well again! I need Gavin to feel well again!
Please pray! Pray that Gavin gets better! Pray that he can be comfortable! Pray that his seizures will stop! Pray that he will sleep! Pray that I can sleep! (Because even when Gavin does, I can't.....because I feel so horrible and I'm so worried about him!) Pray that he can stop crying so much! Pray that I can heal and feel better too! Just pray! Thank you!
My prayer for the day: Lord....please give me strength!
"God is our refuge and strength, a very present help in trouble." Psalm 46:1
9 comments:
Oh Alicia! I'm praying. Can you call a family member or a friend for some help?
my goodness, i'm worried for you and gavin. Praying right now, honey!!!
I just called my Mom, and she is able to help out today.....Thank the Lord! Right now Gavin is actually sleeping and I'm headed to this as well!
PRAYING PRAYING PRAYING!
Can i take the 2 younger boys after school. they can play with morgan and casey and i'll get them to school tomorrow?
GET SOME REST! i'LL CALL YOU LATER!
pATT yBEMA
PRAYERS AND LOVE ARE THERE FOR PRECIOUS GAVIN
AND PRECIOUS YOU!!
THANKS FOR GOD FOR THE HELP (MOM) WHO IS ON HER WAY.
LOVE FOREVER, SHARON
Ok momma, you may need to get some meds for him to get you both through this. Have you ever tried trazadone to help him sleep? Its not a respiratory depressant, so you don't have to worry about that, but I guarantee it will help. Is he on phenobarb or another med that you can check levels and maybe increase those drugs while he is sick?
I'm so sorry, and I hope he gets better soon!
You poor thing! I feel so bad for you. I know how you feel, staying up all night with a super fussy child (the story of my life). But I can only imagine how hard it is with you being sick as well! Whew! Hang in there! I'm so glad your mom was able to come and relieve you for a while! Gotta love your mom!
I wish I lived closer, I would be there in a minute to bring a meal or a cup of coffee. I hope you get some rest and I'll be praying your little man gets better and we can see pictures of his sweet smile again.
I am so sorry, Alicia. I'm prayinf for you both. I know how exhausted you are. Praying for healing, strength, and peace.
Praying for you! Hope you and precious Gavin get well and get some sleep.
Theresa
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